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Reply: Refractive Lens Exchange (RLE)

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Topic History of : Refractive Lens Exchange (RLE)

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Yesterday 16:26 #332

illloyd3

illloyd3's Avatar

Re, refractive lens exchange, on 30/07/2019, @ Chelmsford - is this standard treatment?????

I write this as to express my dis-satisfaction with regard to the operation I underwent 30 July 19, the more time I have to reflect on the experience the more I realise how unprofessionally I have been treated,
My whole journey began with me researching ‘RLE’ after my sister and several friends had the operation most with optical express, my wife’s cousin with [admin edit], and a friend who travelled to [admin edit] last year. I soon come to the conclusion that the best option for me was with optical express, with your world class cutting edge technology, best in the country etc.
By far the biggest concern for me is the operation its self, which all through my research and leading to my consultation at the lakeside store I have been reassured the latest, safest technology and the highest standards are what I should expect from optical express. One process specifically identified as the cutting edge was the fact that optical express had the latest laser cutting technology for precision cutting of the eye and to remove the original lens, to carry out the surgery, I was reassured it was latest procedure offering the best outcome, minimising recovery time and ensuring the safest option in the world.

On the 30th I arrived at the Chelmsford surgery as arranged, obviously nervous , I was taken through all of the pre op tests and waited for the operation, it wasn’t until just prior to this, after I had all of the tests, eye drops in to dilate my eyes, I had the numbers 1 & 2 drawn on my face and lines drawn on my eyes them self, I had the gown on the hair net and foot slippers. Literally just prior to the operation that I was told the surgeon had decided to carry out the operation under knife not the state of the art precision laser I had been sold the procedure around. I feel that having this sprung upon me at this stage is unacceptable as I was at my most vulnerable and had I been given time to absorb the change to the operation I would have reconsidered,
As a result of this my right eye is almost showing no effect however my left eye is severely bruised and totally blood coloured and painful in comparison, incomparable to my right eye , I believe this is directly due to the method of using a knife to open and remove the lens. On returning to the surgery the next day and speaking to the staff I was informed that it was due to the laser not being available for use, as it wasn’t working, talking to other patients from the day before who had the same issue I noticed that all of us had considerable damage to the left eye, again a direct effect from the outdated method of surgery used on us.

On my way home I asked my wife to call optical express to enquire about the lens surgery and the method surgeon’s use, she was told, all optical express surgeons use lasers for the operation and not the knife method. And the irony listening to the recorded message whilst waiting for a response on the phone explaining how optical express have invested 400 million in the latest world leading technology, Had I been told at consultation that there was any possibility that the operation would be done under knife I would not have booked, as I said the operation was my biggest concern?, this is Not what I paid £6000 for. I feel like I have been miss-sold what should have been a world class operation but instead received a third world operation.
Very unimpressed Leon Lloyd.
20 Jul 2019 08:08 #331

Carl G

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Hi, I had RLE in 2013, sued OE, won, kinda (they would disagree but WTF, they paid for their surgeon's costs and a number of other things and they looked really moronically stupid, greedy and downright evil at the cost hearing, but anyway). I've had lens exchange for monofocal lenses this year (Moorfields, first one went well then I tore my retina, had the second eye done and the prescription was a long way out, getting that fixed (hopefully) later this year) Anyway.
At my first trip to Moorfields I got in to a 'discussion' with Vincenzo Maurino on the subject of Lentis M-Plus MF-IOLs, and this discussion has been bothering me for almost a year now. We were so at odds on the subject of MF-IOLs we could have been talking about entirely different things. I was, frankly, incredulous at his assertions, but even more incredulous at the fact he plainly believed them, and I have to accept that he did so in good faith. So - what's going on?
I started reading some articles in a US journal on 'refractive surprises' (because i have one, apparently) and one, in particular, caught my eye. www.reviewofophthalmology.com/article/re...ter-cataract-surgery
The quote that got my attention was this one, from a surgeon on some of the issues with MF-IOLs / RLE:
'He does not believe in waiting for neuroadaptation in premium lens patients. “I think we are dealing with a deformed lens in most cases,” he says. “Sometimes, you have to wait for the lens to regain its shape once it is placed in the eye. If you wait long enough on a multifocal patient who is complaining of waxy vision, he or she often will slowly get better. People call that neuroadaptation, but what has really happened is that the lens has slowly regained its factory-manufactured shape. With waxy vision, I wait to see if it gets better because if it doesn’t, I’m not going to do PRK or LASIK. Instead, I’m going to take that lens out.”
Of course, for some of us that just doesn't happen. The description struck me as apt though, because of the complexity of shape of the profile a multi-focal lens.
Cutting to the chase: is the real issue for us damaged RLE patients that either manufacturing defects in multi-focal lenses are unacceptably high or that these lenses are damaged in transit to point of implant? Because some people do in fact seem perfectly happy with MF-IOLs. And to say that others just don't get used to them is a lazy and content-free response. I do not believe the surgeon would be able to tell in advance that a lens is damaged without performing some examination that would presumably compromise sterility (somebody help me out here please).
Does anyone have or know anyone who has information on manufacturing failure rates of MF-IOLs? (Sasha?) I'd be very interested to know. Thanks.
18 Jun 2019 18:49 #330

INGLETHORPE

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Hi,

An eye test at the beginning of last year revealed that I had early stage cataracts and I was advised that if I wanted it sorted out I'd have to get it done privately as the NHS wouldn't do anything until my vision was affected. So I ended up having lens replacement surgery with OE, who informed me that not only would this resolve my issue of the cataracts getting worse, but I also wouldn't need to use reading glasses anymore. A win win I thought. I should just say, that I didn't need glasses for anything else - my long sight was better than 20/20.

Mfazo Hove carried out the procedure at OE's Westfield, London clinic on the 22/23 July 2018, is cost me £6k and I've have had nothing but problems. I have negative dysphotopsia in both eyes and slightly different vision in each eye. I'm unable to drive at night as I experience halos and all the road signs are a complete blur. I'm unable to read if the ambient lighting is not perfect - for example fluorescent lighting in a shop means I'm unable to read small print. My eyesight has affected my balance - I have severe vertigo and dizzy spells which only started after the op. I have had a MRI scan on my brain and ear canals to rule out anything else and have had repeated trips to the GP who is trying me on various different tablets to control the vertigo. I also fell down the stairs in January and broke both of my wrists - this was caused by the vertigo. I have an appointment with an ENT balance clinic in August to try and resolve the issues.

I have to say that the whole thing with the eyesight and vertigo has been devastating. I avoid going out because of the balance and it has caused me to suffer with anxiety - something I've never had previously.

I have been to repeated check ups with OE who check my eyes and have repeatedly told me to wait and see if it improves. I was initially told they couldn't do anything for 3 months as they had to wait for the healing process to complete. I understand/accept this, but I am still waiting for them to make up their minds. I had a surgeons review with Dimitris Kazakos on 5th June and he recommended the lenses are swapped for monococals - which means I'll be back to needing reading glasses. Apparently my brain hasn't accepted the new lenses.

My concerns relate to having a further procedure and will it resolve the issues, and also the 12 months aftercare. I have asked that this be extended, but they are really dragging their feet. I feel like they have my money and now they really couldn't care less and are just waiting for the 12months to pass.

If you're considering having this surgery as glasses seem like too much trouble, think again. This has been the worst decision of my life and I feel completely devastated by the outcome.
05 May 2019 08:55 #329

KT

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Oh my!!! After reading your story it’s exactly the same as mine. I also only had reading glasses and they told me I was the ideal candidate for RLE and I wasn’t suitable for laser surgery.

After receiving the paperwork from OE it turns out I had been suitable for laser.

I was supposed to have multi focal lenses in my eyes but it turns out they put in Extended depth of vision lenses, which meant after surgery I most likely would still need reading glasses.

Never in a million years would I have had this surgery if I’d known that..... what would have been the point?

I have all the same symptoms.... dry eyes ( they put in punctual plugs to see if they helped, but wouldn’t give me Lipiflow unless I paid for it) halos, starbursts etc. The first night I went out driving it was like being in a Sci-fi movie. All the halos round the lampposts were everywhere and I came home and cried for 4 hours, I just wanted to walk in front of a bus.... I was so upset.

These people don’t care, all they’re interested in is the money.

David Teenan was my surgeon and I know that he is being sued by dozens of people (me one of them) so how is he still allowed to operate?
27 Apr 2019 15:09 #328

Nicks Story - RLE procedure

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My partner Nick had gone to Optical Express to enquire about surgery after a recommendation from a friend. His eyesight was in very good condition prior to the operation; he had excellent long vision but wanted surgery so that he did not have to wear glasses to read as he kept losing his glasses. I will now attempt to break down the whole sorry saga that has unfolded over the past few months.

October 2018 - Nick attended a consultation with 'refractive counsellor' Ayesha Wilkinson at Optical Express in Sheffield (Meadowhall branch). He initially asked about laser eye surgery but Ayesha Wilkinson immediately dismissed this, saying that it would only last a few years at best and he would need repeat treatments to maintain perfect vision (Oh the irony!). Instead, would he consider RLE? He was told that for a mere £6000 he would have "perfect eyesight" within a month of the operation. The 'refractive counsellor' then switched to salesperson, stating that this was a special discounted rate and that it was not available to all customers, though we all know that is most certainly is. Nick saw the optoemtrist Amandeep Gill, then paid a deposit, with full payment due a few days before surgery, scheduled for a pre-op consultation with the surgeon in Manchester.

Nick then attended a pre-op consultation at the St John St branch of Optical Express in Manchester. His surgeon was Dr Aasheet Desai. Given a thorough eye examination he was told by Dr Desai that his long vision was excellent and it was only his short-vision that required treatment. He was told about the RLE procedure and given the opportunity to ask questions at this point. Nick asked Dr Desai if the procedure would affect his long vision as that was currently perfect. Dr Desai stated that his long vision would not be affected, that lens exchange would only affect short vision if your long-sightedness was being corrected, and as Nick was having his short-sightedness corrected this would not be an issue. He was told that one eye would be operated on Friday and then the other eye on Saturday as there needed to be 24 hours between procedures. At this point Nick asked Dr Desai how long it would take to see significant results from the RLE surgery. He was told by Dr Desai that some people can see instantly, and for some people it can take up to 3 weeks. At no time during this consultation was Nick informed that the healing process would take significantly longer.

About 3 weeks before the scheduled surgery dates on 16/17th November 2018, we received a phone call from OE stating that they had a cancellation and could put the surgery forward to the 3rd November. In addition, as there had been a cancellation, BOTH eyes would now be operated on the same day. We contacted OE and voiced our concerns about this as we were explicitly told that the procedure should be carried out over two days, and it also states this on the paperwork; however this was dismissed by the person we spoke to at Manchester and instead we were told that the OE had recently changed its terms and conditions regarding operating on two eyes on one day and that this was now allowed to happen.

3 November 2018 - Nick goes in for RLE procedure. It was very busy and we were told that the surgeon had another 14 people having the same procedure that day. Nick had a few pre op checks with an optometrist prior to surgery. During these checks a nurse entered the room with a the file of a patient having RLE the same day, and the lenses. The nurse stated that they had run out of a certain strength lens for this patient. The optometrist said that it wasn’t a problem and they would “Stick a 1.5 strength lens in instead”. Nick was alarmed at this but assumed that the optometrist knew what he was talking about. He had his surgery and was sent home to rest with eye drops, eye covers etc.

I should mention at this point that Nick's eyesight has never improved since the operation on the 3rd November. As previously mentioned, Nick had excellent long vision and only wore glasses to read. He chooses not to drive at night now as the glare from lights is too intense. His long vision is poor and he has double vision (ghosting), blurring, glare from lights, and floaters in his eyes on a daily basis. He can see close up to read but there is still blurring around letters. Nick spoke to OE in Sheffield about his impaired ability to drive at night and they have confirmed that he is “within the legal limits” and said that “if anything happens (i.e car crash) not to worry, as on paper you’re within the DVLA requirements to drive”.

Within 2 weeks of the RLE procedures Nick complains of a painful popping in his right eye. We thought it was just part of the healing process but were reassured by OE that there was nothing to worry about when Nick attended his first post-op appointment 2 weeks after his surgery. He was told his eyes were “healing nicely", and when Nick mentioned that he was experiencing glare, halos and double vision he was told this was a normal part of the healing process and it was his brain adjusting to the surgery and to wait another week or two.

I should mention about the "neuroadaption process" being thrown at us numerous times now. As an academic researcher in the field of psychology, I am aware of this process but I said that this was NOT mentioned in any part of the terms and conditions. If this is such an important part of the healing process then why is this not mentioned in ANY of the documentation?? When I aksed this question I was given a medical explanation of the inner workings of the eye instead, not what I’d asked. We were sent away with stronger eye drops and told to wait another 3 weeks when we should see a definite improvement.

1 month after surgery, and with no improvement Nick attends a check-up at OE Sheffield. Once again, he was told by a male optometrist that he had 20/20 vision but that the healing process could take up to 6 WEEKS.

6 weeks after surgery and no improvement in Nick's condition. He is once again told the same story about his brain getting used to the lenses and that glare, haloes, blurring and ghosting are all part of the healing process. Given more eye drops and told to make an appointment for 2 month’s time.

2 months later and no improvement in the condition of Nick’s eyesight. Told by a male optometrist to “stop panicking” about the condition of his eyes. He is also told that if anything is still wrong at the 3 month stage it could be easily sorted out by tweaking it with laser eye surgery in-store. Nick leaves with more eye drops and is not happy. Nick asks to speak to Dr Desai who performed the RLE procedure and was told this was not possible as he has to wait at least 3 months for a referral. Nick’s repeated requests to speak to Dr Desai were all refused.

10 weeks after RLE procedure… Nick demands another appointment with a different optometrist for a second opinion. Seen by a female optician who tells him that it is not possible to offer him laser eye surgery in-store and he has been misinformed. Nick is told he will just have to wait and “see how it goes”. Nick also asks what percentages of people have problems after RLE like his and she told him 10 percent of patients still have significant problems up to 3 months after surgery!!! Neruroadaption and dry eyes are mentioned yet again and more drops are administered. We do not know who or what to believe at this stage as we are getting conflicting information about what can be done to sort Nick’s eyesight out.

3 months after RLE procedure - Nick goes into OE Sheffield and demands to speak to the male optometrist who said he could correct his eyesight with laser eye in-store. He offered no apologies for giving Nick the wrong information, instead said that he was going to refer Nick to the surgeon who performed the RLE procedure. An appointment was made to see Dr Desai at OE Manchester.

26th February 2019: Nick travels to Manchester for his 4.15pm appointment with Dr Desai. The receptionist could not find any details of this and stated that he would have to make another appointment unless he had proof of this appointment! Luckily, Nick had the email from OE confirming his appointment. However, Nick had to wait over two hours to be seen by the surgeon as he had to be “squeezed in” due to him not being on the system for an appointment that day.

Dr Desai stated that the problems Nick was experiencing were completely normal and that it was his brain that had the problem with the lenses and there was no problem with the lenses themselves. Nick was also told that it could take up to SIX MONTHS for his eyes to fully heal. Nick was then told to return to OE Manchester in two month's time. One month later, Nick was extremely worried as there absolutely no improvement in the condition of his eyes and he demanded to see Dr Desai again. By this time, Nick has started to take anti-depressants because of the situation and has told me he feels suicidal and is scared he is going to go blind.

Nick attends another appointment at OE Manchester and explains all of this and his current state of mind. Dr Desai then suggests that Nick tries some different eye drops as “a last resort” which will dilate the pupil and hopefully improve his eyesight. The drops were soon discontinued as Nick suffered from extreme eye pain akin to a burning sensation, which caused Nick to cry out in pain when he administered the drops, followed by severe headaches.

26th March 2019 – Nick and I attend an appointment at OE Manchester to see Dr Desai once again. We are placed in a waiting room with three other couples. One lady had had a laser eye procedure which had caused her to have permanent floaters in both eyes. She was seen before us and she left the consulting room in tears. She told us that she had been told that there was nothing that OE could do to help her with her problem unless she was willing to have a YAG capsulotomy which she did not want to have done in case her eyesight further deteriorated. Another gentleman had had RLE surgery on one of his eyes a few days ago and it had caused a fog over this eye that he described as like “looking through cling film”. He was refusing to have the other eye done until they sorted out this eye. Another lady had been to see OE over the past 15 months complaining of grit in her eyes. She kept getting fobbed off by OE and repeatedly sent away with eye drops (Unfortunately, we did not get to hear the outcome of her consultation as we were in next).

We told Dr Desai about the continuing problems with the drops, blurring, haloes, depression, double vision etc and the best he could offer Nick at this stage is another Intraocular (IOL) procedure to remove the existing multifocal lenses and replace them with monofocal lenses which could restore Nick's vision to how it was pre op, although Dr Desai stated there could be no guarantees that this would be a success. Dr Deadeye (as we now call him) said he would have to seek approval from OE head office for the IOL procedure but we would have to "keep chasing it up” ourselves.

We were also told that the healing process "varies" from person to person and in fact can take "weeks, months or YEARS for your eyes to adapt properly" and sometimes "NOT AT ALL". However, we are fully aware of the risks that this procedure carries and have zero confidence in it working. We ask about the 12 month OE aftercare and we are told that any procedure after that time will have to be paid for, regardless of whether OE were at fault. The consultant also mentioned that he was not employed by OE directly and therefore couldn’t comment further about refunds or complaints. We leave with Nick resigned to the fact that he will have to live with his eyesight permanently damaged unless he wishes to undertake the risky IOL procedure, which neither of us are confident of OE performing.

April 2019 - 5 weeks after the last appointment and a lot of chasing later and we still have got no further. We have received a copy of the terms and conditions from head office, the same as other people on this forum. However, I am still waiting for head office to explain where on their terms and conditions it explicitly mentions the process of neuroadaptation. The response we were also sent by head office was full of medical jargon, that unless you possess a degree in medicine or are an optometrist, the average customer would not understand it. Therefore I have asked for a letter explaining this in layman's terms. So far no response.

So what do we do now? I have a suicidal partner who has had his eyesight ruined by OE and they have made us practically beg for any help.

Nick now has an appointment with an NHS specialist next week for an independent opinion and we are considering legal action against OE.
05 Apr 2019 17:42 #327

admin

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There's currently much discussion on the new MBEF Fb group* concerning horrific visual problems members have suffered as a result of refractive lens exchange (RLE/NLR) - including blindness!

And with adverse incidents escalating, I thought it timely to advise people unaware of the facility to report their issues via the Yellow Card Scheme on the MHRA website :kiss:

You will need your lens ID, which should have been given to you at the time of surgery, but if not, contact the provider and ask for the ID card to be emailed to you asap - one per eye.


yellowcard.mhra.gov.uk

Please note that there is no cost for lens ID cards.

*Visit www.facebook.com/groups/MBEFoundation/ to join.
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