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TOPIC: Refractive Lens Exchange (RLE)

Campaign support 09 Jun 2014 09:55 #271

  • Mr Starburst
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It's all very well donating to Oxford hospital but I think your money would be better invested in Sasha's campaign.

I was helped immeasurably by Sasha who doesn't get paid for what she does. I know full well that she won't let the industry GET AWAY WITH RUINING SO MANY EYES AND LIVES!

We can't expect Sasha to do all this without our help and it is of vital importance that we support her campaign, as there's no one else in the world doing anything comparable to what she does.

PLEASE support her efforts even if it's only a tenner.
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Refractive Lens Exchange (RLE) 08 Jun 2014 21:33 #272

  • anon
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I had a long chat with the nurse who did the checks before I saw the doctor. She told me they see many patients who have had their sight damaged by OE and others. She said that the NHS are left to pick up the pieces.

I will attempt to get my money back from Hitachi finance and I can assure you that a large percentage will be donated to Oxford eye hospital.

Retreatment on the NHS 08 Jun 2014 16:55 #273

  • Should Have Gone to Specsavers
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Anon - that was by no means a criticism of you, I was simply pointing out that the NHS is being penalised financially thanks to the mistakes Optical Express have made.

If enough people like you go to the NHS with post op problems it should filter back to the government that they are in fact subsidising Optical Express!

Never mind that people are having their eyes destroyed, the government will only act when they realise it's costing them money.

Retreatment on the NHS 08 Jun 2014 16:36 #274

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You are probably right, but I have paid National Insurance all of my working life for 48 yrs and have had very little NHS treatment in that time. My other option is to let OE get near my eyes again which is not an option.

Retreatment on the NHS 08 Jun 2014 16:23 #275

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The government should force Optical Express to reimburse the NHS for the costs of this treatment.

RLE complications 08 Jun 2014 16:08 #276

  • anon
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I took myself off to Oxford eye hospital this morning hoping they wouldn't tell me to b*gger off.

On the contrary, when I explained that Optical Express had not contacted me for a week regarding the problem with my left eye they told me the medical term is Posterior Capsular Opacification. Perhaps OE don't know it as they didn't tell me that.

I want nothing to do with OE who need to be shut down ASAP. I will get an appointment at Oxford in the next 1-2 months to have the laser treatment I need there.

I have never experienced such bad customer service as I have at OE. Thank the Lord we all have Sasha to help guide us through our problems. When I was googling eye surgery back in early 2012 this site didn't exist unfortunately because if it did I would never have gone to Optical Express. They have a lot to answer for and I hope they are brought to book.

Comments appreciated 06 Jun 2014 18:53 #277

  • Bobby2
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I know exactly how you feel, you are looking for answers, probably believing you have made one error of judgement and don't want to make another one.

To advise you is hard, all I can do is share my experience and pass on the knowledge I was forced to seek after the event, which OE did not provide prior to surgery.

I point blank refused to allow OE to perform any further surgery and went elsewhere for my correction, which was very expensive. I would say the surgery was no more painful than the first, but it is risky. One of my eyes was damaged during the explant, which causes some problems, so take great care in choosing your surgeon. I advise you ask Sasha for advice on that as she knows who's done what to patients and can tell you who to avoid.

Have you been told that you need YAG? Is your vision like looking through tracing paper? After having YAG I belive you will be stuck with the multifocal lens. After my explant I had YAG in both eyes, but the improvement in my clarity of vision was small. I then had to have it repeated, which if I was at 0 and was hoping for 10, it took me to a 5 or 6. I still get misty vision in dull conditions.

I hope this helps, it's the best I personally can do and if only you could trust them, it should be the experts providing your answers.

PS: Ask about the probability of retinal detachment after YAG laser.
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Comments appreciated 05 Jun 2014 18:59 #278

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Bobby2, thank you for sharing your story.

I would like some advice as I had RLE 2 years ago and have not got on with the quality of vision in my multifocal lens from day one, so much so that it took a few weeks to convince me to have a monofocal lens in the second eye .

I can now see OK with the monofocal lens, but can't read at less than arms length with it.

I am now faced with two options:
1. Remove the varifocal lens and replace with monofocal - another painful operation, which I'm told is very risky and will will leave me needing glasses to look at an ipad, read a newspaper, etc
2. YAG laser my multifocal lens - not painful, which I'm told will decrease the glare and improve all round vision clarity.

I'm finding it a difficult decision and would appreciate your comments.

RLE surgeons & GMC 04 Jun 2014 22:58 #279

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I believe the percentage of people who need an explant following Refractive Lens Exchange at Optical Express to be considerably higher than 1%.

This is based on the rapidly increasing numbers who contact me each week.

An explant is far from an easy procedure, even for the most experienced and proficient surgeon trying to fix the mess left by an OE surgeon, with no guarantee of success for the patient.

And in an attempt to fix the problem, if OE have blasted the lens with YAG laserr, then an explant will generally be not possible.

To date, the GMC have summarily investigated many complaints received against OE's best known RLE surgeons: David Teenan, Stefan Klopper and Andre Oberholster - and dismissed most! Often because they say too much time has elapsed since the incident.

So these same surgeons continue to ruin more people's eyes and lives.

Something very wrong with this picture methinks!

However, sooner rather than later, the GMC will have no choice but to stop making pathetic excuses for their lack of action against these surgeons and actually deal with the issue.

So if you haven't already done so, PLEASE send your complaint to the GMC.

Email me if you would like GMC ontact details for your complaint: This email address is being protected from spambots. You need JavaScript enabled to view it.

Dimitri Kazakos 04 Jun 2014 20:45 #280

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I read with great interest the recent posts from Nadia and Keith. Believe me you are so lucky and wise to have made the right decision not to proceed. Unfortunately I was not so lucky.

I have suffered for the last 18 months or so after having RLE, with very poor vision, discomfort of every kind and paying fortunes trying to be corrected, which has been far from successful. Now I have been told by a senior NHS consultant that nothing more can be done to improve either my vision or the discomfort.

I read with further interest the last post from Admin. This was the very same surgeon who lied to me prior to surgery, butchered my eyes and then lied to me after surgery regarding the appalling state of vision he left me with.

The contents of this letter, which was never given to me prior to or since surgery, completely contradicts everything I was told. I am a perfectionist; I have/had a very visual demanding job involving close intricate work, yet OE chose those lenses for me, which the surgeon Dimitri Kazakos confirmed was the right choice and fitted.

I also note that the letter does not mention explants, so if like me you are left unable to function after surgery, you have to have the lenses removed and replaced with monofocal lenses. OE will have you believe the probability of this is 1/200, 1/100 is more likely.

The explant is extremely risky, much riskier than the initial surgery. You will also have to wear glasses for near vision at best, but if like me will end up wearing varifocals full time, but even with varifocals along with their distortions, vision is far worse than pre surgery.

Thanks again Sasha for your hard work and for providing this platform for the truth to be told.

OERML & My Beautiful Eyes Foundation rely on your support to expose the horrors of this unregulated industry.

Your help is very much appreciated!

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